0:00:05.000,0:00:07.620 We invite you to listen to episodes of the new 0:00:07.620,0:00:11.300 podcast series from the Spotkania Biuletynu (Bulletin Meetings), titled " 0:00:11.300,0:00:12.260 Engaged Polish Studies. 0:00:14.040,0:00:16.880 " Polish studies aren't a helpless observation 0:00:16.880,0:00:17.380 of the world. 0:00:17.860,0:00:19.420 They offer tools 0:00:19.420,0:00:20.700 to navigate it, 0:00:20.700,0:00:22.500 help understand it, 0:00:22.660,0:00:26.000 and prevent exclusion and loneliness. 0:00:27.620,0:00:29.680 This is the Polish studies 0:00:29.680,0:00:31.840 we want to showcase through our project: 0:00:33.380,0:00:35.460 Engaged Polish Studies. 0:00:48.060,0:00:51.280 In the next episode of the "Slubin Meetings Biuletynu" podcast series, 0:00:51.280,0:00:53.920 we'll discuss maladic narratives, 0:00:53.940,0:00:55.500 or narratives about illness, 0:00:55.500,0:00:58.360 and representations of illness in contemporary culture 0:00:58.700,0:00:59.960 , not just literary culture. 0:00:59.980,0:01:00.960 We'll also discuss 0:01:01.000,0:01:03.740 how literary studies interprets and organizes these 0:01:03.740,0:01:07.540 kinds of stories and the tools they use. 0:01:08.040,0:01:10.520 The pretext for today's conversation is 0:01:10.520,0:01:12.620 the publication of two issues of the literary movement 0:01:12.620,0:01:14.820 devoted to maladic discourse, 0:01:14.820,0:01:16.820 a concept we'll attempt 0:01:16.820,0:01:18.340 to unpack and 0:01:18.400,0:01:19.760 dissect today, 0:01:19.920,0:01:22.980 thanks to the editors of one of 0:01:22.980,0:01:23.380 the movement's maladic issues, 0:01:23.380,0:01:24.560 who are with us today. 0:01:24.620,0:01:25.480 Joanna Szewczyk, 0:01:25.500,0:01:28.080 PhD, assistant professor in the Department of Anthropology, 0:01:28.100,0:01:30.340 Literature, and Cultural Studies at the Faculty of Polish Studies 0:01:30.340,0:01:31.820 , Jagiellonian University. 0:01:31.860,0:01:32.720 Good morning, 0:01:32.800,0:01:33.200 Joanna. 0:01:33.200,0:01:33.760 Good morning, 0:01:33.800,0:01:36.080 it's a pleasure to meet you, and thank you very much for the invitation. 0:01:36.700,0:01:39.460 Also with us today is Wiktoria Kulak, MA, 0:01:39.480,0:01:42.040 a PhD candidate in literary studies at the Doctoral School 0:01:42.040,0:01:44.660 of the University of the Commission of National Education in Krakow. 0:01:44.700,0:01:45.400 Good morning. 0:01:46.400,0:01:49.420 You are members of the Center for Research on Transcultural Discourses and 0:01:49.420,0:01:50.280 Disorders of Illness, 0:01:50.420,0:01:52.500 which operates at the Faculty of Polish Studies, Jagiellonian University. 0:01:52.520,0:01:55.700 You are both also interested in women's history 0:01:55.950,0:01:57.670 , feminist discourse, and 0:01:57.670,0:01:59.490 the history of women's writing. 0:01:59.610,0:02:00.350 You, Joanna, 0:02:00.410,0:02:02.910 also study mourning and 0:02:02.910,0:02:05.210 pandemic narratives in contemporary culture, 0:02:05.230,0:02:05.550 while you, 0:02:05.550,0:02:05.910 Wiktoria, 0:02:05.910,0:02:08.470 are more drawn to theoretical, 0:02:08.470,0:02:09.190 literary, 0:02:09.190,0:02:10.990 and genological reflection. 0:02:11.009,0:02:13.350 You are preparing a doctoral dissertation on 0:02:13.350,0:02:16.430 contemporary women's column writing. 0:02:16.950,0:02:19.210 There is another important thread 0:02:19.210,0:02:20.130 that connects you, 0:02:20.150,0:02:22.730 which provides the pretext for our 0:02:22.730,0:02:23.250 conversation today. 0:02:23.740,0:02:27.060 This is a research interest related to 0:02:27.060,0:02:29.520 illness narratives, 0:02:29.520,0:02:32.200 which are an important element of contemporary 0:02:32.200,0:02:33.220 literary culture. 0:02:33.220,0:02:36.920 They also constitute an important quantitative resource of these 0:02:36.920,0:02:39.640 malaria narratives in contemporary literary culture, 0:02:39.660,0:02:43.320 but there are also quite a few in earlier literary culture. 0:02:43.360,0:02:46.400 Due to this presence of malaria narratives in 0:02:46.400,0:02:47.940 culture, their quantity, 0:02:47.940,0:02:49.020 availability, and 0:02:49.080,0:02:50.640 universality in a sense. 0:02:50.840,0:02:51.740 It seems 0:02:51.780,0:02:55.460 that storytelling is very 0:02:55.460,0:02:56.620 necessary for illness, or in illness. 0:02:56.620,0:02:59.220 How can we explain 0:02:59.220,0:03:02.440 this strong connection between storytelling and illness from a literary perspective? 0:03:04.040,0:03:07.340 After this excellent introduction, I could also 0:03:07.340,0:03:07.920 add 0:03:07.940,0:03:10.540 that the scholarly relationships, 0:03:10.560,0:03:17.000 which were very satisfying for me and Wiktoria, 0:03:17.000,0:03:21.060 included not only the editorial work on two 0:03:21.060,0:03:24.640 issues of the Malady literary movement, 0:03:24.700,0:03:29.000 but it's also worth mentioning an earlier 0:03:29.000,0:03:29.500 project 0:03:29.540,0:03:33.460 we had the pleasure of working on together. 0:03:33.640,0:03:38.460 Collaboration with the then-forming center 0:03:38.460,0:03:41.000 for research on cultural discourses of illness at 0:03:41.000,0:03:43.700 the Faculty of Polish Studies at the Jagiellonian University. 0:03:43.700,0:03:46.560 I'm referring here to a three-day conference, 0:03:46.700,0:03:51.100 a nationwide academic conference devoted precisely 0:03:51.100,0:03:53.980 to malaria narratives in literature and culture, 0:03:54.060,0:03:58.940 which we then gathered under the banner of "illnesswriting." 0:03:59.080,0:04:03.060 This conference truly attracted a large number 0:04:03.060,0:04:06.820 of representatives from various 0:04:06.820,0:04:07.320 research centers, 0:04:07.360,0:04:09.300 including academics, 0:04:09.300,0:04:11.060 doctoral candidates, and 0:04:11.060,0:04:12.080 students. 0:04:12.260,0:04:16.399 This resulted in two issues 0:04:16.399,0:04:17.019 of the literary movement, 0:04:17.100,0:04:21.740 one of which we had the pleasure of editing, 0:04:21.740,0:04:23.400 titled "Maladic Discourse: 0:04:23.480,0:04:25.040 Figures and Ontologies." 0:04:25.280,0:04:28.060 The title referred to the search for such a 0:04:28.060,0:04:32.340 The broadest possible framework for encompassing the 0:04:32.340,0:04:33.420 diverse texts 0:04:33.420,0:04:37.640 that have contributed to this issue under one 0:04:37.640,0:04:39.680 umbrella. 0:04:39.720,0:04:41.620 The immense interest the conference generated, 0:04:41.720,0:04:46.280 however , 0:04:46.360,0:04:50.680 is a sign of the popularity and growing expansion 0:04:50.680,0:04:54.660 of maladic narratives or pathographic narratives in 0:04:54.660,0:04:55.540 literature. 0:04:56.430,0:04:59.970 In Poland and, of course, beyond. 0:05:00.250,0:05:01.950 Indeed, 0:05:01.970,0:05:05.690 when we try to consider 0:05:05.730,0:05:09.250 why a story about illness, or a story within illness 0:05:09.250,0:05:11.350 , is so necessary, 0:05:11.410,0:05:13.450 it seems to me 0:05:13.450,0:05:14.650 that we could draw 0:05:14.710,0:05:17.890 on anthropological and literary tropes. 0:05:17.890,0:05:18.390 That is, 0:05:18.390,0:05:21.490 if we consider various concepts 0:05:21.490,0:05:22.530 of identity 0:05:22.610,0:05:25.770 that assume a certain processuality of identity, 0:05:25.830,0:05:27.570 or its design, 0:05:27.650,0:05:29.670 the idea that identity is not something given 0:05:29.670,0:05:32.290 but rather a certain project, 0:05:32.310,0:05:33.970 then it seems 0:05:34.010,0:05:38.730 that from this perspective, a connection between story and illness 0:05:38.730,0:05:41.150 is already revealed 0:05:41.150,0:05:43.790 , because both are, in fact, 0:05:43.790,0:05:45.070 processual in some way. 0:05:45.130,0:05:46.970 It is a process 0:05:46.970,0:05:51.370 whose end is often difficult to 0:05:51.370,0:05:51.910 predict 0:05:51.910,0:05:53.210 or anticipate. 0:05:53.770,0:05:58.210 At the same time, if we look at the narrative 0:05:58.210,0:06:03.030 as a process, and at the person's identity as a 0:06:03.030,0:06:04.730 process, 0:06:04.830,0:06:07.430 at this identity narrative, 0:06:07.510,0:06:10.330 then illness can indeed become 0:06:10.330,0:06:14.190 a crucial point of life reorientation. 0:06:14.210,0:06:15.250 Perhaps a crisis, 0:06:15.250,0:06:17.550 but also an opportunity to reorient, 0:06:17.630,0:06:21.270 to reevaluate this identity narrative, 0:06:21.390,0:06:23.030 to reorient one's identity 0:06:23.050,0:06:25.710 as an ill person . 0:06:25.710,0:06:26.870 So it seems to me 0:06:26.910,0:06:29.630 that these connections between illness, 0:06:29.630,0:06:30.590 narrative, 0:06:30.590,0:06:34.850 and literature are crucial here and 0:06:34.850,0:06:38.130 should be particularly emphasized. 0:06:39.740,0:06:44.080 Framing one's identity within a narrative framework would 0:06:44.080,0:06:45.860 be an action 0:06:45.880,0:06:46.880 that provides, 0:06:46.900,0:06:49.120 as Antony Giddens wrote, 0:06:49.200,0:06:53.020 a sense of ontological security in a constantly 0:06:53.020,0:06:54.920 changing world. 0:06:54.980,0:06:56.140 It seems 0:06:56.260,0:07:02.440 that this story about illness is in some way 0:07:02.440,0:07:04.680 an important element of this. 0:07:04.840,0:07:08.800 It perhaps allows for the experience to make sense, 0:07:08.910,0:07:13.750 or to be framed within the narrative, which is also subject 0:07:13.750,0:07:16.450 to change under the influence of the experience of illness. 0:07:16.530,0:07:20.890 At the same time, it is also perhaps an opportunity to 0:07:20.890,0:07:25.090 attempt to make sense of or understand this 0:07:25.090,0:07:25.970 experience. 0:07:26.540,0:07:27.600 Often difficult, 0:07:27.640,0:07:29.340 usually challenging, 0:07:29.360,0:07:31.880 perhaps that would be a better way to put it. 0:07:32.320,0:07:35.040 And so, looking back, 0:07:35.080,0:07:37.940 both at the number of lectures 0:07:37.960,0:07:41.400 at our conference 0:07:41.420,0:07:43.500 that dealt with literature 0:07:43.500,0:07:45.580 and at the 0:07:45.660,0:07:48.960 content of the issue of Ruch Literacki we edited 0:07:48.960,0:07:50.520 , 0:07:50.600,0:07:52.080 one might say 0:07:52.140,0:07:56.500 that it's virtually untenable to say that "There are those famous 0:07:56.500,0:07:57.820 words of Virginia Woolf, 0:07:57.840,0:08:00.120 which we made, somewhat provocatively, 0:08:00.120,0:08:02.140 the motto of our conference. 0:08:02.160,0:08:05.700 " I'm referring, of course, to Virginia Woolf's essay on 0:08:05.700,0:08:06.360 illness, 0:08:06.380,0:08:08.800 in which Woolf wrote 0:08:08.820,0:08:10.240 that it's puzzling 0:08:10.340,0:08:14.540 that illness hasn't been narrated on 0:08:14.540,0:08:15.060 the scale 0:08:15.060,0:08:18.200 of other major literary themes. 0:08:18.280,0:08:22.340 This is, of course, quite an inspiring statement, and I think 0:08:22.340,0:08:24.580 it encourages polemics 0:08:24.650,0:08:25.670 for those 0:08:25.730,0:08:28.390 interested in maladic discourse, 0:08:28.410,0:08:31.710 all genres related to illness writing, 0:08:31.710,0:08:34.350 but at the same time, it's a statement 0:08:34.350,0:08:36.270 that, at the time 0:08:36.309,0:08:37.230 it was made, 0:08:37.230,0:08:39.530 was already untenable. 0:08:39.549,0:08:42.190 However, one might indeed wonder 0:08:42.190,0:08:48.010 to what extent this extraordinary expansion of 0:08:48.010,0:08:48.730 disease narratives, 0:08:48.730,0:08:51.780 narratives such as pathographies, 0:08:51.840,0:08:53.200 autopathographies, 0:08:53.220,0:08:54.840 or, for example, variants 0:08:54.840,0:08:56.640 such as cancer narratives, 0:08:56.660,0:08:59.940 how many examples of this type of narrative can we find in 0:08:59.940,0:09:03.360 the contemporary literary field. 0:09:03.640,0:09:04.920 This clearly shows 0:09:05.000,0:09:08.060 that we may be dealing here with a kind of 0:09:08.060,0:09:12.320 maladic turn in the humanities. 0:09:12.360,0:09:15.920 The point, of course, is what has been discussed many times, 0:09:15.920,0:09:18.240 and has been very well described, 0:09:18.280,0:09:19.740 the concept of the turn. 0:09:19.760,0:09:21.960 While it is very useful, 0:09:22.020,0:09:25.200 it also always raises the 0:09:25.200,0:09:27.920 danger of a certain abuse or 0:09:27.920,0:09:29.120 terminological fashion. 0:09:29.440,0:09:30.240 Nevertheless, 0:09:30.320,0:09:34.180 if we look at the expansion of these 0:09:34.180,0:09:35.460 texts and 0:09:35.500,0:09:38.500 the various research areas they occupy 0:09:38.500,0:09:40.880 and how these areas are reconfigured, 0:09:41.000,0:09:43.800 allowing for the asking of ever new research questions, 0:09:43.920,0:09:44.740 it seems to me 0:09:44.800,0:09:48.740 that talking about this maladic turn is currently 0:09:49.080,0:09:49.780 very, 0:09:49.780,0:09:51.800 very valid and very necessary. 0:09:52.980,0:09:54.320 One of the first researchers 0:09:54.380,0:09:55.980 to talk about, 0:09:55.980,0:09:59.740 to think about, the maladic discourse in terms of the turn 0:09:59.740,0:10:00.240 was, 0:10:00.280,0:10:01.200 if I remember correctly, 0:10:01.260,0:10:02.020 Monika Ładoń, 0:10:02.020,0:10:05.760 right? In her book "Illness as Literature." 0:10:05.960,0:10:10.120 And you cited Virginia Woolf in your statement, 0:10:10.140,0:10:13.120 and Ładoń, in turn, begins her narrative of 0:10:13.120,0:10:15.820 the maladic turn with a discussion of Susan 0:10:15.820,0:10:16.860 Zontag, 0:10:17.000,0:10:17.500 right? 0:10:18.620,0:10:21.300 Which side are you on as researchers? 0:10:21.300,0:10:22.560 The metaphorical one, 0:10:22.560,0:10:25.620 or a more realistic 0:10:25.620,0:10:26.600 approach 0:10:26.600,0:10:31.080 , some kind of balance between 0:10:31.080,0:10:31.880 medical 0:10:31.900,0:10:35.000 discourse and this narrative of illness, 0:10:35.040,0:10:37.160 focused on the subject, 0:10:37.160,0:10:38.700 on the sick self? 0:10:39.900,0:10:42.100 Your question seems very valid to me here, 0:10:42.120,0:10:43.040 but I wonder 0:10:43.140,0:10:45.640 if it couldn't be simply centered somehow 0:10:45.640,0:10:46.480 . 0:10:46.560,0:10:48.700 However, in these maladaptive texts 0:10:48.700,0:10:50.800 emerging in contemporary literature, 0:10:50.800,0:10:53.000 which seems to be trying to move away from 0:10:53.000,0:10:56.120 metaphorization and focus more on this 0:10:56.120,0:10:58.700 direct description of the experience of illness, 0:10:58.760,0:11:01.360 on showing this experience as 0:11:01.480,0:11:03.040 it really is, 0:11:03.120,0:11:07.270 various metaphorical formulations still appear 0:11:07.350,0:11:10.190 that in some way describe these experiences. 0:11:10.290,0:11:11.390 For example, the metaphor, 0:11:11.410,0:11:12.210 if I remember correctly, 0:11:12.210,0:11:16.530 appearing in Aneta Żuchowska's "Miech" about 0:11:16.530,0:11:17.450 a spaceship journey, 0:11:17.490,0:11:22.550 which Maria Świątkowska brilliantly analyzed in 0:11:22.550,0:11:23.750 one of her texts, 0:11:23.850,0:11:25.390 it seems to me 0:11:25.450,0:11:27.350 that such a categorical departure from this is simply 0:11:27.350,0:11:28.010 impossible. 0:11:28.150,0:11:30.270 But a perspective is emerging again, 0:11:30.330,0:11:33.640 moving away from presenting the 0:11:33.640,0:11:37.240 experience of illness in a 0:11:37.240,0:11:38.080 romanticized way, 0:11:38.080,0:11:38.400 I think. 0:11:38.400,0:11:41.400 It's more about showing and also redefining 0:11:41.400,0:11:42.080 what 0:11:42.200,0:11:43.700 being ill looks like, 0:11:43.760,0:11:47.920 which, again, referring to meat, can be 0:11:47.920,0:11:48.440 viewed as 0:11:48.440,0:11:51.440 meaning that being ill isn't so beautiful, and as contemporary 0:11:51.440,0:11:53.500 medicine is trying to portray it 0:11:53.500,0:11:53.960 , 0:11:53.960,0:11:55.760 I think there's also this process of moving away 0:11:56.220,0:11:58.680 from this beautiful death in the hospital, 0:11:58.680,0:12:00.260 where everything is always clean, 0:12:00.340,0:12:02.520 beautiful, and pretty, 0:12:02.540,0:12:05.000 but this illness is filled with pain and 0:12:05.000,0:12:05.640 suffering. 0:12:06.630,0:12:08.930 Let me add, 0:12:08.930,0:12:11.570 because I completely agree with Wiktoria, 0:12:11.590,0:12:15.270 that when we talk about this classic, 0:12:15.270,0:12:18.910 canonical text by Susan Sontag, 0:12:18.950,0:12:20.810 it is indeed one of the first 0:12:20.810,0:12:21.410 texts 0:12:21.430,0:12:25.170 encountered by those interested in 0:12:25.170,0:12:29.270 maladic discourse or representations of illness in 0:12:29.270,0:12:31.450 literature or various cultural texts. 0:12:31.470,0:12:32.670 And indeed, it is a text 0:12:32.670,0:12:36.010 that is already becoming very popular. 0:12:36.110,0:12:38.290 commentaries, and often also critical ones, 0:12:38.310,0:12:42.930 actually from the moment of translation into Polish, 0:12:42.930,0:12:43.770 or even earlier, 0:12:43.790,0:12:46.130 when only fragments were translated, 0:12:46.150,0:12:49.950 voices appeared in such research polemics 0:12:49.950,0:12:50.730 . 0:12:51.390,0:12:54.170 Is this position not too 0:12:54.170,0:12:55.230 radical, 0:12:55.310,0:12:58.910 or is it not actually demanding rejection? 0:12:58.910,0:13:01.010 Any metaphors of illness, 0:13:01.090,0:13:02.910 opposing interpretation, 0:13:03.010,0:13:04.310 saying 0:13:04.310,0:13:08.150 that illness is illness and this is the healthiest way 0:13:08.150,0:13:09.070 to be ill, 0:13:09.170,0:13:09.670 recognizing 0:13:09.670,0:13:11.150 that this is so, 0:13:11.250,0:13:13.870 isn't this going too far, 0:13:13.870,0:13:17.350 isn't this depriving patients 0:13:17.350,0:13:20.310 of the opportunity to articulate their experience and, 0:13:20.310,0:13:23.780 through metaphors, build a certain community of 0:13:23.780,0:13:25.620 experience with other patients? 0:13:25.660,0:13:26.760 This is indeed a topic 0:13:26.760,0:13:28.300 that has been frequently raised. 0:13:28.380,0:13:29.120 If 0:13:29.200,0:13:32.860 we reject certain metaphors, 0:13:33.020,0:13:35.800 won't we then condemn ourselves to 0:13:35.980,0:13:39.600 a medical profession, 0:13:39.700,0:13:42.440 which for many people is very off-putting, 0:13:42.520,0:13:46.620 terrifying, and actually prevents them from coming to terms 0:13:46.620,0:13:49.480 with their experience of illness? 0:13:49.900,0:13:52.880 Of course, there are other 0:13:52.880,0:13:53.600 related issues here, 0:13:53.700,0:13:57.620 when the researcher herself, in her next essay, 0:13:57.680,0:13:59.060 "AIDS and Its Metaphors," 0:13:59.060,0:14:02.620 10 years after the emergence of illness as metaphor, clearly 0:14:02.620,0:14:04.120 softened her stance, 0:14:04.180,0:14:04.660 saying 0:14:04.660,0:14:08.260 that in her interpretation, she had focused on 0:14:08.260,0:14:11.800 the Aristotelian understanding of metaphor 0:14:11.800,0:14:13.120 as a literary, 0:14:13.120,0:14:15.760 or stylistic, figure, 0:14:15.760,0:14:17.200 and did not refer to these 0:14:17.200,0:14:18.920 20th-century studies. 0:14:19.120,0:14:20.040 By metaphor, 0:14:20.040,0:14:22.760 I mean, of course , Lake and Johnson's 0:14:22.760,0:14:24.400 book Metaphors in 0:14:24.400,0:14:25.960 Our Lives , 0:14:25.960,0:14:28.560 where metaphor essentially becomes a way of 0:14:28.560,0:14:30.600 thinking, 0:14:30.600,0:14:31.220 acting, 0:14:31.820,0:14:32.400 and speaking. 0:14:33.060,0:14:33.660 Indeed, 0:14:33.660,0:14:35.540 it's hard to deny 0:14:35.540,0:14:38.440 or even deny Susan Zontag's point here 0:14:38.640,0:14:41.580 when she explained her position, 0:14:41.660,0:14:42.740 saying 0:14:42.740,0:14:44.280 that metaphorizing— 0:14:44.280,0:14:47.800 that certain metaphors of illness are in some way morally 0:14:47.800,0:14:49.840 reprehensible and greatly burden the sick person— 0:14:49.880,0:14:53.460 but at the same time, it's impossible to completely 0:14:53.460,0:14:54.180 free oneself from metaphor. 0:14:54.220,0:14:54.580 And I think 0:14:54.580,0:14:56.960 we can find many such 0:14:56.960,0:14:57.680 examples here, 0:14:57.680,0:15:00.120 where these metaphors of illness 0:15:00.440,0:15:01.520 are particularly condemnable, 0:15:01.580,0:15:04.640 referring to military discourse. 0:15:04.860,0:15:08.260 On the other hand, we can find narratives, 0:15:08.260,0:15:11.340 such as those pointed out by Małgorzata Okupnik in her 0:15:11.340,0:15:15.680 book about the experience of losing health, 0:15:15.780,0:15:20.140 in which sick people nevertheless very consciously utilize 0:15:20.140,0:15:23.000 this metaphor, placing themselves 0:15:23.000,0:15:27.320 in the position of a soldier 0:15:27.360,0:15:29.420 who fights, 0:15:29.920,0:15:33.520 using various types of weapons, 0:15:33.540,0:15:36.420 with strategists at their side, 0:15:36.420,0:15:37.360 i.e., doctors, 0:15:37.360,0:15:39.220 but also the brave resistance movement, 0:15:39.260,0:15:41.760 i.e., supporters in illness 0:15:41.780,0:15:46.400 who help lead this fight. 0:15:46.420,0:15:46.940 We see 0:15:47.000,0:15:49.780 that these types of metaphors also prove 0:15:49.780,0:15:52.920 effective and useful in some way. 0:15:52.940,0:15:57.180 However, the issue of such a critical approach 0:15:57.180,0:15:59.140 to Susan's text 0:15:59.280,0:15:59.640 , 0:15:59.640,0:16:04.400 which increasingly appears in new 0:16:04.400,0:16:08.580 books on maladic issues, is 0:16:08.580,0:16:10.760 very apparent, as exemplified by 0:16:10.760,0:16:15.860 Beata Koper's recent book on post-1989 0:16:15.860,0:16:18.280 maladic discourse . 0:16:18.340,0:16:21.460 In this book, the scholar devotes an entire chapter 0:16:21.460,0:16:25.080 to the reception of critical illness as a metaphor. 0:16:25.080,0:16:26.300 I mention this because 0:16:26.480,0:16:29.210 she is also one of the authors 0:16:29.210,0:16:32.470 who published in our issue of Ruch 0:16:32.470,0:16:33.030 Literacki. 0:16:33.570,0:16:36.650 Beata's book is also significant because 0:16:36.650,0:16:41.290 it attempts to interpretively balance 0:16:41.290,0:16:45.420 our frequent research biases 0:16:45.420,0:16:49.520 toward interpreting illness narratives as 0:16:49.520,0:16:52.060 a form of self-therapy, and, on the other hand, 0:16:52.060,0:16:55.240 interpreting illness narratives as 0:16:55.240,0:16:57.160 critical tools, for example, 0:16:57.420,0:16:59.000 towards medicine. 0:16:59.060,0:17:03.820 This, in turn, shifts this maladic narrative toward 0:17:03.820,0:17:05.040 a social dimension, 0:17:05.040,0:17:05.380 doesn't it? 0:17:05.380,0:17:07.700 It makes it, in a sense, a tool 0:17:08.600,0:17:10.819 of social criticism and shows 0:17:10.839,0:17:12.880 that these narratives have a communal, 0:17:12.880,0:17:15.040 social character. 0:17:15.480,0:17:16.680 Illnesses are political. 0:17:16.760,0:17:17.260 What 0:17:17.280,0:17:17.780 I said, 0:17:17.780,0:17:19.460 We can summarize this with a statement like this, 0:17:19.480,0:17:21.880 which also appears in Beata's text, 0:17:21.900,0:17:22.560 in the issue 0:17:22.579,0:17:24.020 you edited. 0:17:24.400,0:17:25.859 And from your perspective, 0:17:25.859,0:17:28.020 what does this political nature consist of, 0:17:28.020,0:17:29.540 how might it be understood? 0:17:30.440,0:17:33.280 And this is indeed a very 0:17:33.280,0:17:34.320 broad topic. 0:17:34.680,0:17:38.240 In her text, Beata Koper analyzed the diaries of 0:17:38.240,0:17:40.000 Audrey Lord and Krystyna Kofta, 0:17:40.000,0:17:42.940 examples of cancerography, 0:17:42.960,0:17:46.400 those cancerography narratives centered around 0:17:46.400,0:17:48.120 the experience of breast cancer. 0:17:48.160,0:17:49.060 And it seems 0:17:49.140,0:17:52.280 that breast cancer is precisely the kind of disease 0:17:52.280,0:17:55.420 in which this political nature is particularly visible. 0:17:56.120,0:17:56.820 First of all, 0:17:56.820,0:18:00.640 if we consider the deeply entrenched 0:18:00.640,0:18:04.060 cultural understanding of breast cancer, 0:18:04.060,0:18:06.900 also associated with the fetishization of women's breasts 0:18:06.900,0:18:10.380 as symbols of femininity and 0:18:10.380,0:18:11.900 motherhood. 0:18:12.100,0:18:12.860 Indeed, 0:18:12.860,0:18:17.520 if we invoke certain 0:18:17.520,0:18:18.140 metaphors, 0:18:18.140,0:18:22.200 for example, to remain within the sphere of this issue of breast cancer, 0:18:22.220,0:18:25.340 it is often presented in a very ironic 0:18:25.340,0:18:28.400 way. It's often called a "sexy disease," 0:18:28.440,0:18:30.000 which refers to, 0:18:30.100,0:18:33.990 well, the persistent 0:18:33.990,0:18:37.970 definition of female identity through corporeality, 0:18:38.050,0:18:42.330 through reference to maternal functions, 0:18:42.330,0:18:47.190 or even through the care of the body, 0:18:47.330,0:18:49.530 which becomes a kind of cultural capital, 0:18:49.590,0:18:51.150 or is understood as such. 0:18:51.690,0:18:53.590 Hence, it truly seems 0:18:53.650,0:18:57.690 that breast cancer fits very well into these 0:18:57.690,0:18:59.510 political issues, 0:18:59.530,0:19:01.390 because on the one hand, it shows, for example, that 0:19:01.710,0:19:04.410 for a very long time, women were even 0:19:04.410,0:19:05.150 suggested 0:19:05.150,0:19:09.230 that if they had breast reconstruction immediately after a mastectomy 0:19:09.230,0:19:10.890 , 0:19:10.890,0:19:14.410 it would have a positive impact on their well-being. 0:19:14.410,0:19:17.010 So, there was a visible encouragement to 0:19:17.010,0:19:20.610 focus primarily on appearance, 0:19:20.650,0:19:24.210 which could, of course, be linked to 0:19:24.210,0:19:25.270 sociocultural 0:19:25.270,0:19:28.710 constructs such as the beauty myth and the related " 0:19:28.710,0:19:29.330 baklarz" (baklarz), 0:19:29.350,0:19:30.920 especially in relation to breast cancer. 0:19:30.920,0:19:31.720 If I remember correctly 0:19:31.780,0:19:33.880 , a term analogous to "Pinklash" 0:19:33.900,0:19:36.100 appeared at the time, 0:19:36.180,0:19:39.580 referring to the pink ribbon 0:19:39.640,0:19:43.820 that was supposed to signify a campaign for 0:19:43.820,0:19:45.480 breast cancer prevention. 0:19:45.480,0:19:47.680 But at the same time, the question arose 0:19:47.800,0:19:51.460 as to what extent these campaigns actually served this purpose, 0:19:51.540,0:19:54.320 and to what extent they were deeply entangled in 0:19:54.320,0:20:00.040 the interests of various cosmetics corporations, for example 0:20:00.140,0:20:01.400 , profiting from it. 0:20:01.400,0:20:02.020 So it seems 0:20:02.040,0:20:07.220 that here, the political is understood, 0:20:07.220,0:20:10.780 for example, as the possibility of making changes in 0:20:10.780,0:20:13.000 social life. 0:20:13.340,0:20:17.520 It's very 0:20:17.520,0:20:18.100 visible in the case of breast cancer. 0:20:18.600,0:20:20.740 But it's not just that, of course. 0:20:20.800,0:20:24.460 These are also questions about the possibility of introducing 0:20:24.460,0:20:25.260 change, 0:20:25.420,0:20:29.140 about the possibility of redefining such relationships, 0:20:29.350,0:20:30.370 within this field of illness, 0:20:30.370,0:20:33.730 or within the field of various institutions 0:20:33.730,0:20:37.210 connected to the condition of illness. 0:20:37.270,0:20:38.290 So, it seems to me 0:20:38.330,0:20:39.550 that these are also issues 0:20:39.550,0:20:43.410 that should be taken into account, and they appear, 0:20:43.410,0:20:47.750 of course, in many other texts 0:20:47.750,0:20:52.130 that could be classified as pathographic narratives. 0:20:52.490,0:20:57.010 An example of this would be 0:20:57.010,0:20:57.990 Mateusz Pakuła's excellent book, 0:20:58.090,0:21:00.370 "How I Didn't Kill My Father and How Much 0:21:00.370,0:21:00.910 I Regret It," 0:21:00.990,0:21:03.230 which is essentially a 0:21:03.230,0:21:03.870 confused 0:21:03.870,0:21:06.270 , pathological genre . On the one hand, it's a mourning diary, 0:21:06.310,0:21:10.380 and on the other, it's a story about accompanying someone through 0:21:10.380,0:21:10.780 illness. 0:21:10.780,0:21:15.580 But at the same time, as the author himself declared, 0:21:15.760,0:21:20.060 it was intended to be a voice on the issue of euthanasia. 0:21:20.220,0:21:21.920 So it seems 0:21:21.980,0:21:25.340 that in this context, the political dimension also 0:21:25.340,0:21:26.480 comes into play. 0:21:28.240,0:21:30.040 The people listening don't see me here, 0:21:30.080,0:21:32.460 but I simply 0:21:32.460,0:21:34.160 nod my head in agreement with Asia's every comment and wonder 0:21:34.220,0:21:35.340 what more I could add. 0:21:36.090,0:21:38.130 But perhaps I'll refer to Beata Koper's book. 0:21:39.190,0:21:40.790 Beata Koper points out 0:21:40.930,0:21:43.110 that sick people, 0:21:43.110,0:21:46.690 patients, from the moment of diagnosis are immediately 0:21:46.690,0:21:48.090 , 0:21:48.090,0:21:48.590 one might say, 0:21:48.590,0:21:51.850 inserted into a strictly directed network of relationships. 0:21:52.070,0:21:53.010 And this, 0:21:53.070,0:21:53.570 one might say, 0:21:53.630,0:21:56.050 subordination to the medical system, 0:21:56.150,0:21:57.630 which, 0:21:57.730,0:21:59.290 as Asia Ptoćplom mentioned, 0:21:59.290,0:22:03.010 is brilliantly characterized by Mateusz Pakuła in his 0:22:03.010,0:22:03.350 book, 0:22:03.350,0:22:04.630 revealing the various dimensions 0:22:04.920,0:22:07.600 of this entanglement in the medical system. 0:22:07.640,0:22:10.860 On the one hand, the sick father, 0:22:10.860,0:22:11.920 who is a patient, 0:22:11.920,0:22:14.040 is subject to this entanglement, but on the other, the entire family, 0:22:14.060,0:22:17.060 who accompanies him through this illness and 0:22:17.060,0:22:18.600 is also confronted with this— 0:22:18.680,0:22:22.080 perhaps using Agnieszka Daugrza's term here— 0:22:22.200,0:22:24.120 pathosystemic structure, 0:22:24.200,0:22:27.840 in which doctors, 0:22:27.860,0:22:28.660 nurses, 0:22:28.660,0:22:33.820 and those providing care for the sick are somehow trapped. 0:22:34.800,0:22:35.600 Referring to 0:22:35.640,0:22:38.340 what Asia may have also said about breast cancer, 0:22:38.340,0:22:39.960 that socially, 0:22:39.960,0:22:42.520 and I think also politically, 0:22:42.520,0:22:45.440 certain 0:22:45.440,0:22:46.820 systems 0:22:46.820,0:22:47.380 and perspectives 0:22:47.380,0:22:49.440 are imposed on sick people, regarding how they should behave during illness, 0:22:49.440,0:22:51.380 so that they can seemingly 0:22:51.380,0:22:53.680 be reintegrated into the healthy segment 0:22:53.680,0:22:54.660 of society. 0:22:55.180,0:22:57.960 So in the case of cancer, 0:22:57.980,0:22:59.060 for women 0:22:59.060,0:23:00.040 or men, 0:23:00.040,0:23:03.520 for example, the effects of chemotherapy can be gradually 0:23:03.520,0:23:04.200 masked, 0:23:04.200,0:23:06.740 for example, by wearing a headscarf. 0:23:06.760,0:23:08.580 This is also brilliantly demonstrated, 0:23:08.680,0:23:11.200 again referring to Aneta Szyżkowska, 0:23:11.200,0:23:11.920 where 0:23:12.020,0:23:14.100 she strongly opposes this, 0:23:14.100,0:23:14.580 saying 0:23:14.580,0:23:17.200 that she doesn't want to experience her illness in this way, 0:23:17.320,0:23:19.920 doesn't want to cover up the effects of chemotherapy, 0:23:19.940,0:23:21.780 doesn't want to mask its symptoms. 0:23:22.360,0:23:24.360 Now, perhaps referring to 0:23:24.360,0:23:25.020 narratives 0:23:25.040,0:23:26.660 that are closer to my heart, 0:23:26.680,0:23:30.760 those of dwellings in various 0:23:30.760,0:23:31.980 medical institutions, 0:23:32.040,0:23:35.500 I might refer to 0:23:35.500,0:23:38.000 Barbara Klicka's more fictional text, "Zdrój" (Spa), 0:23:38.060,0:23:42.100 which perfectly depicts a kind of 0:23:42.100,0:23:44.620 microcosm of a closed facility, 0:23:44.620,0:23:45.960 a sanatorium, 0:23:46.160,0:23:50.300 housing people with various 0:23:50.300,0:23:51.220 ailments. 0:23:52.090,0:23:54.410 In my opinion, Klicka brilliantly illustrates the 0:23:54.490,0:23:57.190 degree to which illness is subject to politics, 0:23:57.250,0:24:00.290 the degree to which patients are subject to hierarchy. 0:24:00.350,0:24:02.970 The more severe the ailment, 0:24:02.990,0:24:03.490 one might say, 0:24:04.200,0:24:07.140 in Klicka's image, 0:24:07.220,0:24:09.160 the higher one simply stands in that hierarchy. 0:24:09.180,0:24:11.660 The more one exudes one's illness and 0:24:11.660,0:24:13.740 conforms to what 0:24:13.880,0:24:14.600 one might call 0:24:14.700,0:24:16.420 social notions of illness, 0:24:16.560,0:24:17.660 of dignified, 0:24:17.660,0:24:18.180 clean, and 0:24:18.200,0:24:19.060 good illness, 0:24:19.140,0:24:22.540 the higher 0:24:22.540,0:24:23.120 the hierarchy within that sanatorium. 0:24:23.160,0:24:24.420 And the heroine, 0:24:24.420,0:24:25.980 the narrator of Klicka's novel, 0:24:25.980,0:24:26.800 opposing this, 0:24:26.920,0:24:29.800 unable to find 0:24:29.800,0:24:32.300 a place for herself in this entire enclosed microcosm, 0:24:32.620,0:24:33.380 is, 0:24:33.520,0:24:34.100 one might say, 0:24:34.220,0:24:37.600 condemned to a kind of banishment by the 0:24:37.600,0:24:38.240 Racjuszki company. 0:24:38.300,0:24:40.920 So this political nature will manifest itself not only in such systems, 0:24:40.920,0:24:41.380 I think, 0:24:41.380,0:24:44.340 the social imposition of this image of being ill 0:24:44.340,0:24:46.340 , 0:24:46.360,0:24:49.240 but also in inter-societal relations. 0:24:50.900,0:24:52.620 In the context of 0:24:52.700,0:24:53.600 what you mentioned, 0:24:53.600,0:24:57.580 the story is a form of transcending the system, 0:24:57.660,0:24:58.020 right? 0:24:58.020,0:24:59.960 A form of emancipation, 0:24:59.960,0:25:01.460 this process of writing a story, 0:25:01.460,0:25:03.180 of recording experiences. 0:25:03.180,0:25:06.180 Here, of course, I'm thinking more about 0:25:06.180,0:25:06.920 non-fiction, 0:25:06.920,0:25:08.440 more of a personal document, 0:25:08.440,0:25:09.960 which is a documentation 0:25:11.510,0:25:13.650 of being ill, written by a specific person, 0:25:13.670,0:25:14.170 by a sub-biota 0:25:14.210,0:25:16.350 that we can get to know and 0:25:16.350,0:25:17.210 identify. 0:25:17.530,0:25:18.090 What 0:25:18.170,0:25:21.050 also seems interesting to me in this approach 0:25:21.050,0:25:21.730 to the story, 0:25:21.730,0:25:23.390 as precisely such a critical strategy, 0:25:23.390,0:25:24.190 transcending the system, 0:25:24.370,0:25:26.010 A kind of emancipation, 0:25:26.110,0:25:27.590 this 0:25:27.690,0:25:28.510 is the moment 0:25:28.590,0:25:30.390 when a sick person, 0:25:30.450,0:25:32.010 writing down their experience, 0:25:32.090,0:25:33.970 decides to make it public, 0:25:33.970,0:25:35.930 which in itself is of course also a 0:25:35.930,0:25:36.470 political gesture, 0:25:36.490,0:25:36.810 right? 0:25:36.810,0:25:38.370 It's a way of reaching out to 0:25:38.410,0:25:41.210 the social through simply sharing 0:25:41.210,0:25:42.650 this narrative. 0:25:42.750,0:25:43.550 And 0:25:43.630,0:25:47.230 what interests me, and what you've surely 0:25:47.230,0:25:48.330 come across in your reading and research, 0:25:48.390,0:25:48.890 is 0:25:48.950,0:25:50.350 why people write, 0:25:50.370,0:25:51.410 why authors, 0:25:51.410,0:25:53.250 authors of merical narratives write. 0:25:55.890,0:25:57.720 Perhaps with an example, 0:25:57.720,0:26:00.300 because that's the easiest way for me to illustrate it. 0:26:00.300,0:26:01.540 And I'll refer again, 0:26:01.540,0:26:02.860 I think, to Mateusz Pakuła. 0:26:03.180,0:26:04.340 His book 0:26:04.340,0:26:06.060 How I Didn't Kill My Father and How Much 0:26:06.060,0:26:06.560 I Regret It. 0:26:06.600,0:26:11.260 Because the author repeatedly commented on his decision to publish it, both in the text itself and in subsequent 0:26:11.260,0:26:13.120 interviews and 0:26:13.120,0:26:17.020 conversations 0:26:17.020,0:26:17.640 . 0:26:17.960,0:26:19.240 Pakuła emphasized 0:26:19.280,0:26:21.460 that initially, his notes were intended to be 0:26:21.460,0:26:24.540 a form of self-therapeutic process, 0:26:24.810,0:26:27.630 one that was meant to help him simply process and 0:26:27.630,0:26:28.330 understand what 0:26:28.430,0:26:31.870 was happening around him and within himself. 0:26:32.710,0:26:35.670 His mother then asked him to write a eulogy 0:26:35.670,0:26:36.670 for his father. 0:26:36.670,0:26:41.750 Under the pressure of emotions and experiences related to 0:26:41.750,0:26:43.370 his father's illness and 0:26:43.370,0:26:44.870 the medical system, 0:26:44.870,0:26:47.670 it began to grow uncontrollably, 0:26:47.690,0:26:50.370 quickly ceasing to be simply a text 0:26:50.410,0:26:52.710 to be delivered at the funeral. 0:26:53.610,0:26:55.870 For Pakuła, the decision to publish his notes 0:26:55.870,0:26:57.810 also became , I believe, 0:26:57.910,0:27:01.250 a way of making sense of his father's existence, marked by suffering and 0:27:01.250,0:27:03.810 pain, confronted with his 0:27:03.810,0:27:08.190 helplessness in the face of the healthcare system and 0:27:08.190,0:27:10.690 Polish law, and here the issue 0:27:10.690,0:27:11.290 of euthanasia has already been raised. 0:27:12.090,0:27:14.770 And it was precisely this euthanasia that became the trigger, 0:27:14.790,0:27:16.410 as you just mentioned, 0:27:16.450,0:27:19.550 for such a confrontation with social expectations 0:27:20.030,0:27:21.210 and , I believe, a 0:27:21.250,0:27:22.070 very broad discussion 0:27:22.090,0:27:24.370 on the legality of euthanasia in Poland. 0:27:24.650,0:27:25.390 It seems to me 0:27:25.430,0:27:27.850 that Pakuła's book also received considerable publicity 0:27:27.850,0:27:29.550 for the play 0:27:29.570,0:27:32.410 he directed, and yet it reaches, 0:27:32.410,0:27:33.190 one might say, 0:27:33.290,0:27:35.130 a wider audience— 0:27:35.130,0:27:37.090 not just readers 0:27:37.110,0:27:40.310 but also theatergoers. 0:27:40.370,0:27:44.970 This play was broadcast, I think, in December 0:27:44.970,0:27:46.390 by Polish Television, 0:27:46.410,0:27:49.210 making it generally accessible to everyone. 0:27:50.760,0:27:55.200 I completely agree with Wiktoria, and 0:27:55.200,0:27:57.400 it truly seems to me 0:27:57.460,0:28:01.560 that Pakuła's book exemplifies 0:28:01.560,0:28:02.940 the problem of 0:28:02.940,0:28:06.320 why these narratives are published, 0:28:06.440,0:28:10.200 why some of these narratives are published. 0:28:10.420,0:28:11.200 It seems to me 0:28:11.240,0:28:16.080 that a crucial issue here is also the attempt 0:28:16.080,0:28:20.280 to build or create an empathetic, 0:28:20.360,0:28:25.420 perhaps affective, community between the writers and 0:28:25.420,0:28:26.600 the audience, 0:28:26.660,0:28:29.700 among whom there may, of course, be people facing 0:28:29.700,0:28:31.920 a similar situation, 0:28:31.960,0:28:34.820 with a similar experience of illness, 0:28:34.880,0:28:36.820 but certainly not only. 0:28:37.040,0:28:38.120 So, it seems to me, 0:28:38.490,0:28:42.250 this is also very important here. 0:28:42.390,0:28:44.570 Moreover, I must say, 0:28:44.790,0:28:47.110 referring in turn to the narrative, 0:28:47.110,0:28:51.030 that it is a pathographic narrative, 0:28:51.030,0:28:54.090 albeit in a somewhat broader sense. 0:28:54.130,0:28:54.630 That is, 0:28:54.630,0:28:56.850 it's not just a narrative about illness, 0:28:56.890,0:28:58.390 but also a narrative of mourning. 0:28:58.490,0:29:00.630 In fact, this is a very close way 0:29:00.630,0:29:04.170 of thinking about pathographic narratives. 0:29:04.210,0:29:08.010 If the very name "pathography" derives from 0:29:08.010,0:29:10.510 the Greek word "suffering" and "to describe," 0:29:10.590,0:29:11.630 then these are narratives 0:29:11.630,0:29:14.590 that in some way attempt to articulate the 0:29:14.590,0:29:16.430 experience of suffering, 0:29:16.590,0:29:19.630 which can of course be understood here as 0:29:19.630,0:29:20.730 illness, 0:29:20.750,0:29:21.930 as being touched 0:29:21.930,0:29:26.870 by one's own illness or the illness of loved ones 0:29:26.890,0:29:29.050 . But at the same time, 0:29:29.050,0:29:32.930 a broadly understood component of loss very often appears in these narratives. 0:29:32.930,0:29:34.430 or mourning. 0:29:34.490,0:29:35.290 And this is not only because 0:29:35.390,0:29:39.070 mourning after the death of someone who, 0:29:39.070,0:29:44.650 for example, struggled with a chronic illness 0:29:44.650,0:29:45.010 is 0:29:45.010,0:29:47.830 a very common element of these 0:29:47.830,0:29:51.330 pathographic narratives, as exemplified by 0:29:51.330,0:29:53.210 Mateusz Pakuła, 0:29:53.290,0:29:57.390 but this loss can also be understood as the loss of 0:29:57.390,0:29:59.610 a previous way of life, 0:29:59.790,0:30:03.470 ability, or opportunity. 0:30:03.550,0:30:04.670 It seems 0:30:04.730,0:30:07.860 that this focus on coping 0:30:07.860,0:30:11.560 with one's own grief or loss in 0:30:11.560,0:30:16.280 pathographic narratives is also very important, and 0:30:16.280,0:30:21.120 the increasing number of such publications in 0:30:21.120,0:30:24.280 contemporary literature is very significant. 0:30:24.560,0:30:28.960 An example of such a narrative is Justyna Wicenta's quasi 0:30:28.960,0:30:32.140 -diary book, " 0:30:32.240,0:30:33.460 Lullaby with a Hurricane," 0:30:33.500,0:30:37.820 in which the author describes her traumatic 0:30:37.820,0:30:40.940 experience related to the sudden death 0:30:40.940,0:30:43.340 of her several-month-old son. 0:30:43.380,0:30:47.800 At the same time, it is a record of both mourning and 0:30:47.800,0:30:52.860 attempts to cope with this experience of mourning, 0:30:53.000,0:30:55.540 which somehow eludes any 0:30:55.540,0:30:57.940 paradigms or patterns, 0:30:58.040,0:31:03.120 but at the same time, it is also a record of the suffering 0:31:03.120,0:31:05.320 caused by loss. 0:31:05.840,0:31:07.160 and 0:31:07.180,0:31:11.400 how this loss affects the body, 0:31:11.480,0:31:13.860 for example, through pharmacotherapy, 0:31:13.920,0:31:17.280 which the author also describes in great detail. 0:31:17.400,0:31:20.920 At the same time, she also clearly emphasizes 0:31:20.920,0:31:25.980 the self-therapeutic dimension of writing in this publication. 0:31:26.020,0:31:27.360 This means 0:31:27.460,0:31:28.860 that she essentially wants 0:31:29.000,0:31:32.560 this book to be a testament to the presence of the deceased 0:31:32.560,0:31:33.720 child in her life, 0:31:33.780,0:31:39.670 but also that her daughter would never have had to face one with 0:31:39.670,0:31:40.170 such 0:31:40.220,0:31:44.020 a transgenerational message of trauma 0:31:44.020,0:31:47.220 if such a veil of silence had been placed over this death 0:31:47.220,0:31:48.560 . 0:31:48.760,0:31:49.460 But 0:31:49.560,0:31:50.700 what's also striking 0:31:50.700,0:31:51.060 is 0:31:51.060,0:31:55.320 that the lullaby with the hurricane ends with a recommendation 0:31:55.320,0:31:56.640 for institutions 0:31:56.680,0:32:00.920 that parents coping with 0:32:00.920,0:32:03.600 the grief of losing a child can turn to. 0:32:03.660,0:32:06.640 So, one can clearly see this 0:32:06.640,0:32:07.360 orientation here. 0:32:07.660,0:32:12.260 On the one hand, building such a community in a— 0:32:12.260,0:32:14.240 I 0:32:14.240,0:32:16.420 don't want to use the word "how-to"—dimension, 0:32:16.500,0:32:18.500 but in a way that suggests 0:32:18.520,0:32:21.000 where to seek help, 0:32:21.000,0:32:22.600 where to seek support. 0:32:24.700,0:32:26.720 If I may add something here, 0:32:26.780,0:32:27.600 it seems to me that 0:32:27.660,0:32:28.660 what Asia was talking about just now 0:32:28.680,0:32:32.180 is a "how-to" ending to the lullaby with 0:32:32.180,0:32:32.680 the hurricane. 0:32:33.230,0:32:36.650 Not only can you find it in this narrative, 0:32:36.710,0:32:38.510 but if I remember correctly, 0:32:38.510,0:32:42.130 Karolina Wiktor, at the end of "Wołga przez Afazja, 0:32:42.210,0:32:43.850 Wołgą przez Afazja," 0:32:43.950,0:32:48.130 also offers a quasi-how-to guide 0:32:48.370,0:32:53.090 on how to cope with 0:32:53.090,0:32:54.030 the experience of aphasia in certain social situations. 0:32:54.110,0:32:56.790 But I think Klaudia could have 0:32:56.790,0:32:57.830 said the most about it here. 0:32:58.190,0:33:00.250 Aphasia is on my mind right now, 0:33:00.430,0:33:01.830 but I'll let you finish. 0:33:03.120,0:33:04.800 It simply occurred to me 0:33:04.820,0:33:06.640 how Asia said 0:33:06.660,0:33:07.820 that this isn't just one book, 0:33:07.820,0:33:11.440 that it's an autobiographical account 0:33:11.440,0:33:12.500 of her own experiences, 0:33:12.500,0:33:15.560 but also an attempt to build a certain community, 0:33:15.560,0:33:16.220 to show 0:33:16.220,0:33:19.080 that you're not alone in this experience, 0:33:19.080,0:33:22.940 that you can simply seek support. 0:33:23.700,0:33:25.000 In the context of the aphasia 0:33:25.080,0:33:26.240 you mentioned, 0:33:26.280,0:33:30.260 writing can also be thought of simply as an 0:33:30.260,0:33:31.000 act. 0:33:32.030,0:33:33.110 engaging the body, 0:33:33.210,0:33:34.970 which in the process of illness, 0:33:35.030,0:33:36.030 this act, 0:33:36.130,0:33:39.070 which in the process of illness can also help, 0:33:39.070,0:33:41.890 because, for example, patients experiencing aphasia, 0:33:41.930,0:33:43.370 in a state of aphasia, 0:33:43.430,0:33:47.230 are often asked during the therapy process to write, 0:33:47.270,0:33:51.290 to take notes. This is not only a type of therapy 0:33:51.310,0:33:54.550 that is supposed to help with re-settling 0:33:54.610,0:33:55.250 into this new, 0:33:55.250,0:33:56.630 post-aphasia world, 0:33:56.630,0:33:57.270 regaining 0:33:58.180,0:33:59.740 one's identity, and so on, 0:33:59.820,0:34:02.020 but also helps regain the use of one's hand, 0:34:02.060,0:34:03.160 right? Through writing, 0:34:03.160,0:34:05.420 through performing some activity. 0:34:05.760,0:34:07.740 So this is also 0:34:07.800,0:34:08.679 an important thread in the context of 0:34:08.679,0:34:09.620 what we were talking about , 0:34:09.620,0:34:09.960 isn't it? 0:34:09.960,0:34:12.340 Another aspect of writing, drawing attention to 0:34:12.340,0:34:16.060 the physical aspect of the creative process. 0:34:16.760,0:34:19.060 But illnesses can be told not only 0:34:19.060,0:34:21.460 through words, and not only through 0:34:21.460,0:34:23.100 tools like writing, 0:34:23.139,0:34:24.219 literature, 0:34:24.260,0:34:25.600 or narratives; 0:34:25.620,0:34:29.540 other tools are also used in contemporary culture 0:34:29.540,0:34:30.679 . 0:34:30.780,0:34:32.100 Which ones have you encountered? 0:34:32.100,0:34:33.580 Which ones interested you? 0:34:33.600,0:34:34.840 Did you find them interesting? 0:34:36.960,0:34:38.280 In fact, I think 0:34:38.320,0:34:40.100 this might be a good moment 0:34:40.159,0:34:42.420 to refer a bit to the texts 0:34:42.440,0:34:47.300 included in the issue of 0:34:47.300,0:34:48.199 the Literary Movement we edited, 0:34:48.280,0:34:49.080 because indeed, 0:34:49.100,0:34:49.860 as I said, 0:34:49.900,0:34:52.020 these texts were very diverse. 0:34:52.600,0:34:56.679 Therefore, we were looking for a concept 0:34:56.719,0:34:58.700 broad enough 0:34:58.760,0:35:00.720 to allow us 0:35:00.720,0:35:01.520 to focus these texts in some way. 0:35:01.700,0:35:04.760 And here, the title was conceived by Iwona 0:35:04.760,0:35:05.620 Boruszkowska, 0:35:05.670,0:35:10.230 who proposed the concept of figure, 0:35:10.230,0:35:11.790 and also ontology. 0:35:11.830,0:35:12.290 It seems 0:35:12.290,0:35:14.170 that this very concept of figure, 0:35:14.190,0:35:16.550 if we were to look at its definition, 0:35:16.650,0:35:21.160 would be a good one here. On the one hand, figure 0:35:21.160,0:35:23.560 refers to the shape of a figure, 0:35:23.580,0:35:24.740 to the shape of the body, 0:35:24.900,0:35:26.180 but it also refers 0:35:26.340,0:35:28.620 to whether it can refer, for example, to a set of movements, 0:35:28.620,0:35:30.000 for example in dance, 0:35:30.120,0:35:34.660 or to such linguistic 0:35:34.660,0:35:35.520 imagery. 0:35:35.720,0:35:36.620 And it seems 0:35:36.760,0:35:42.560 that this resonated perfectly in the issue we edited 0:35:42.560,0:35:46.080 thanks to the authors and text writers 0:35:46.120,0:35:47.560 who contributed to it. 0:35:48.040,0:35:51.740 Suffice it to mention 0:35:51.740,0:35:54.300 Michał Rymaszewski's very interesting text on the typographic 0:35:54.300,0:35:56.420 representation of illness, 0:35:56.440,0:36:00.240 in which the author analyzed typographical devices 0:36:00.240,0:36:03.720 used in poetic projects to 0:36:03.780,0:36:07.240 demonstrate possible ways of creating or 0:36:07.240,0:36:09.580 representing mental illness. 0:36:09.660,0:36:13.040 Another extremely interesting example 0:36:13.040,0:36:16.580 that would refer to these texts extending 0:36:16.580,0:36:20.760 beyond the realm of literature would be Alicja Miller's article 0:36:20.760,0:36:24.800 on choreographing disability, 0:36:24.820,0:36:29.020 in which the researcher focused on strategies 0:36:29.020,0:36:34.560 for choreographing alternative motor skills of women with 0:36:34.560,0:36:35.780 disabilities. 0:36:36.020,0:36:39.480 Another such tool, 0:36:39.480,0:36:43.280 or medium for telling stories about illness, also seems 0:36:44.000,0:36:46.600 very interesting. 0:36:46.600,0:36:49.080 This was photography, 0:36:49.080,0:36:53.260 as Agata Andrzejewska writes in her article 0:36:53.260,0:36:56.720 on literary-photographic narrative, 0:36:56.720,0:37:00.340 again specifically about breast cancer in Annie Erno's book. 0:37:00.440,0:37:04.980 She demonstrates the importance of this dual 0:37:04.980,0:37:05.640 project: 0:37:05.640,0:37:06.960 literary on the one hand, 0:37:06.960,0:37:09.260 and photographic on the other, 0:37:09.280,0:37:09.980 which creates, 0:37:10.020,0:37:13.840 which constitutes, a particular kind 0:37:13.840,0:37:15.960 of cancerography, 0:37:15.980,0:37:17.820 in which photography 0:37:17.820,0:37:19.540 is a crucial medium . 0:37:19.580,0:37:20.500 It seems, therefore, 0:37:20.560,0:37:23.320 that these examples could be multiplied, 0:37:23.360,0:37:27.320 because certainly if we were to turn to 0:37:27.320,0:37:31.060 feature films or documentary films, 0:37:31.160,0:37:34.240 we could also point to numerous examples 0:37:34.240,0:37:37.900 of such extra-literary pathographic narratives. 0:37:38.080,0:37:39.740 Nevertheless, I am very pleased 0:37:39.760,0:37:43.410 that this issue of the literary movement, edited by us 0:37:43.410,0:37:46.670 , not only concerned literature 0:37:46.690,0:37:49.710 but significantly broadened the perspective, 0:37:49.750,0:37:50.390 demonstrating 0:37:50.390,0:37:55.910 that this interest in illness encompasses various 0:37:55.910,0:37:59.050 cultural texts and can lead to very 0:37:59.050,0:38:01.530 interesting analyses, 0:38:01.530,0:38:02.550 conclusions, and 0:38:02.940,0:38:04.100 research prospectuses. 0:38:04.460,0:38:06.920 This approach also draws attention to the 0:38:06.980,0:38:09.760 capaciousness of this maladic discourse. 0:38:09.780,0:38:11.540 This is one of its characteristics, 0:38:11.540,0:38:11.900 isn't it? 0:38:11.900,0:38:12.720 It is also said 0:38:12.760,0:38:15.500 to be hospitable. 0:38:16.340,0:38:18.100 I promised at the very beginning of this conversation 0:38:18.140,0:38:21.580 that we would look at this concept of maladic discourse, 0:38:21.600,0:38:23.760 that we would try to unpack it. 0:38:24.650,0:38:27.150 In your opinion, what would be worth starting with is 0:38:27.150,0:38:29.130 pointing out the characteristics of this discourse, 0:38:29.130,0:38:32.590 Or showing how it relates to other 0:38:32.590,0:38:33.570 discourses, 0:38:33.570,0:38:35.450 or other fields of literary thought, 0:38:35.450,0:38:37.630 what's the easiest way to grapple with this concept? 0:38:38.640,0:38:42.140 This is a very difficult question, perhaps due to 0:38:42.140,0:38:46.300 the scope of the concept of maladic discourse, 0:38:46.340,0:38:50.660 which is actually a very broad, 0:38:50.660,0:38:51.820 very capacious concept, 0:38:51.820,0:38:54.060 but also one that points to such essentially 0:38:54.060,0:38:58.440 transdisciplinary connections between various 0:38:58.440,0:38:59.180 fields. 0:38:59.400,0:39:00.400 And it seems 0:39:00.460,0:39:02.860 that this maladic discourse in this form also 0:39:02.860,0:39:05.040 helps reorient 0:39:05.530,0:39:09.850 and rethink this current field of research. 0:39:09.950,0:39:11.850 I certainly think 0:39:11.870,0:39:16.690 it's worthwhile to examine maladic discourse through 0:39:16.690,0:39:20.530 the lens of anthropological and cultural categories, 0:39:20.570,0:39:22.950 related, for example, to the body, 0:39:22.970,0:39:24.770 which becomes a text 0:39:24.830,0:39:26.930 that can be read in illness, 0:39:26.950,0:39:28.770 or to subjectivity 0:39:28.870,0:39:30.650 or identity, 0:39:30.710,0:39:31.210 which can, 0:39:31.250,0:39:33.310 as we've already discussed, 0:39:33.470,0:39:38.740 be subject to such reformulation or reorientation. 0:39:38.820,0:39:39.800 But it seems 0:39:39.880,0:39:43.320 that when it comes to maladic discourse, 0:39:43.380,0:39:45.440 it's not just this 0:39:45.440,0:39:48.340 anthropological and cultural reflection, focused 0:39:48.340,0:39:52.660 on such crucial anthropological categories 0:39:52.660,0:39:55.140 , that's important here, 0:39:55.180,0:39:58.020 but it seems to me 0:39:58.040,0:39:58.940 that the fact 0:39:59.020,0:40:02.940 that maladic discourse also explores 0:40:02.940,0:40:05.500 the field of philosophy, for example, 0:40:05.520,0:40:07.680 by asking about illness 0:40:07.680,0:40:09.720 and experience, 0:40:09.720,0:40:13.340 is also, in my opinion, a very important 0:40:13.340,0:40:18.460 background for pathographic narratives. 0:40:18.660,0:40:20.960 So that's how I would see it. 0:40:21.180,0:40:26.960 And certainly maladic discourse, understood as 0:40:26.960,0:40:28.000 a certain way 0:40:28.170,0:40:32.150 of talking about illness in various disciplines. 0:40:32.210,0:40:33.570 Whether 0:40:33.710,0:40:37.670 it's literary studies, 0:40:37.670,0:40:39.850 cultural anthropology, 0:40:39.890,0:40:41.250 philosophy, 0:40:41.250,0:40:42.010 sociology, 0:40:42.130,0:40:45.670 psychology, or, of course, many others. 0:40:45.830,0:40:50.470 It can also provide critical tools for 0:40:50.470,0:40:54.530 careful reading and examining the phenomenon of 0:40:54.530,0:40:58.450 pathographic narratives or maladic narratives. 0:40:58.490,0:40:59.650 So I think 0:40:59.690,0:41:02.530 it's a very useful, 0:41:02.530,0:41:07.070 though also elusive, perspective. 0:41:07.110,0:41:11.470 It's elusive because of its research scope, 0:41:11.530,0:41:15.450 possibilities, and the multitude of possible perspectives. 0:41:16.400,0:41:17.800 To add something here, 0:41:17.800,0:41:20.560 I think that in general, within Polish literary 0:41:20.560,0:41:23.780 and cultural studies, this maladic discourse is a 0:41:23.780,0:41:24.600 discipline 0:41:24.720,0:41:27.020 that is, so to speak, only just being constituted, 0:41:27.060,0:41:29.120 its foundations being laid. 0:41:29.160,0:41:31.180 It's only now that I get the impression 0:41:31.180,0:41:33.500 that texts are being translated into Polish 0:41:33.520,0:41:36.740 that were already very 0:41:36.740,0:41:39.580 common in the West 0:41:39.580,0:41:42.020 in the late 1980s and 1990s . 0:41:42.020,0:41:42.760 Here, I think 0:41:42.820,0:41:45.570 the main cradle of all this is the 0:41:45.570,0:41:46.070 United States, 0:41:46.090,0:41:50.470 where Arthur Frank's text and the 0:41:50.470,0:41:51.970 figure of the wounded narrator originated, 0:41:51.970,0:41:56.670 or Rita Sharon and the concept of medical humanities, 0:41:56.730,0:42:00.590 or narrative medicine, 0:42:00.590,0:42:01.110 to be precise. 0:42:01.190,0:42:03.490 And here, too, we mentioned earlier 0:42:03.550,0:42:06.190 that Monika Ładań, 0:42:06.210,0:42:10.210 observing these changes in Polish research, 0:42:10.210,0:42:12.390 uses the term "maladic," 0:42:12.510,0:42:15.210 though she does so with a certain distance from 0:42:15.210,0:42:15.990 this category, 0:42:16.010,0:42:17.890 emphasizing the lack of 0:42:17.890,0:42:21.370 systematic knowledge within these studies in what 0:42:21.370,0:42:22.650 seems to me to be Polish context. 0:42:23.370,0:42:24.970 In this perspective of the latest publications, 0:42:25.010,0:42:28.150 we can see a kind of crystallization of 0:42:28.150,0:42:29.510 a distinct research field, 0:42:29.510,0:42:32.910 with a somewhat uniform theoretical underpinning and 0:42:32.910,0:42:34.230 a similar methodology. 0:42:34.690,0:42:38.190 And since editing this issue of 0:42:38.190,0:42:38.910 the literary movement 0:42:38.950,0:42:40.810 we're discussing and to which we've already 0:42:40.810,0:42:42.050 referred many times, 0:42:42.190,0:42:47.110 has your thinking about maledic discourse 0:42:47.110,0:42:47.610 changed in any way? 0:42:48.910,0:42:49.750 I think 0:42:49.750,0:42:50.250 so , 0:42:51.260,0:42:52.120 in the sense 0:42:52.120,0:42:53.820 that it has certainly expanded. 0:42:54.000,0:42:58.420 That is, Wiktoria and I both present 0:42:58.420,0:43:01.760 primarily a literary studies perspective, 0:43:01.780,0:43:03.740 and the texts 0:43:03.760,0:43:05.820 that have appeared in, 0:43:05.900,0:43:08.200 or contributed to, this volume 0:43:08.320,0:43:13.040 break somewhat of this literary studies monopoly. 0:43:13.360,0:43:15.100 What's also certainly 0:43:15.180,0:43:16.420 significant 0:43:16.440,0:43:17.600 is 0:43:17.620,0:43:18.840 that the texts 0:43:18.860,0:43:21.380 that made up this issue we edited 0:43:21.380,0:43:25.220 demonstrate such a multitude of potential perspectives and 0:43:25.220,0:43:28.320 the use of various research tools, 0:43:28.340,0:43:29.960 often unexpected, 0:43:30.060,0:43:31.720 often unanticipated, 0:43:31.760,0:43:35.340 which lead to very interesting results and 0:43:35.340,0:43:36.640 actually demonstrate 0:43:36.940,0:43:40.240 what Wiktoria was talking about: 0:43:40.360,0:43:43.560 that the maladic discourse is still something not 0:43:43.560,0:43:45.400 entirely stabilized, 0:43:45.400,0:43:49.340 but at the same time provoking constant reflection, 0:43:49.440,0:43:54.220 suggesting various research tools and categories 0:43:54.220,0:43:54.760 . 0:43:54.900,0:43:58.560 So working on this issue was certainly an 0:43:58.560,0:43:59.940 intellectual, 0:43:59.940,0:44:03.160 very enriching adventure. 0:44:03.200,0:44:08.620 Perhaps it also confirmed that initial 0:44:08.620,0:44:10.300 , tentative thesis 0:44:10.320,0:44:13.900 that we can already speak of a maladic turn in Poland 0:44:13.900,0:44:15.540 . 0:44:17.040,0:44:19.240 I really liked the metaphor 0:44:19.240,0:44:20.620 Wiktoria used: 0:44:21.160,0:44:21.680 crystallization. 0:44:22.680,0:44:23.900 It shows the stage we're at 0:44:23.920,0:44:25.660 in terms of naradowy discourse and its 0:44:25.660,0:44:28.300 formation in Poland. 0:44:29.560,0:44:31.020 I also wanted to add here 0:44:31.040,0:44:35.220 that perhaps not even editing a single issue 0:44:35.220,0:44:38.140 of a literary movement changed my perspective. 0:44:38.180,0:44:39.040 It certainly broadened it, 0:44:39.100,0:44:40.900 as Asia mentioned here, 0:44:40.940,0:44:43.300 that there were many different readings, 0:44:43.300,0:44:44.400 completely new to me. 0:44:44.900,0:44:48.890 Quite often, quite beyond my 0:44:48.890,0:44:50.890 field of research interests, 0:44:50.910,0:44:53.250 but also, referring to the conference 0:44:53.290,0:44:55.010 we organized, 0:44:55.030,0:44:57.770 because the committee and the Council were all 0:44:57.770,0:44:58.490 women, 0:44:58.570,0:45:00.050 a multitude of readings. 0:45:00.050,0:45:02.070 There really was a very large number of speakers 0:45:02.070,0:45:02.710 who 0:45:02.810,0:45:05.550 presented various readings, 0:45:05.550,0:45:06.850 both of contemporary 0:45:06.850,0:45:08.210 and earlier texts. 0:45:08.210,0:45:09.230 In other words, using what 0:45:09.270,0:45:09.770 we might call 0:45:09.870,0:45:11.610 modern research tools 0:45:11.650,0:45:13.450 that are still being developed 0:45:13.550,0:45:15.970 to read texts, 0:45:16.540,0:45:20.100 let's say from the 19th century, there was an entire block devoted to it. 0:45:20.160,0:45:21.100 So I think 0:45:21.140,0:45:22.560 so, it's definitely a perspective 0:45:22.600,0:45:24.940 that opens up new possibilities for 0:45:24.940,0:45:25.640 readings. 0:45:27.080,0:45:27.740 Finally 0:45:27.740,0:45:30.120 , I'd like us to return to the field 0:45:30.120,0:45:33.220 of literature from this discursive field. 0:45:33.580,0:45:36.900 Which narratives published in recent years have particularly caught 0:45:36.900,0:45:38.040 your attention? 0:45:38.620,0:45:41.200 It's difficult to pinpoint a few specific titles, 0:45:41.200,0:45:43.900 as each maladic narrative is a record 0:45:43.900,0:45:45.180 of distinct experiences 0:45:45.660,0:45:49.400 that have influenced my 0:45:49.400,0:45:51.720 perspective on reality to varying degrees. 0:45:52.140,0:45:54.220 Nevertheless, there are two narratives 0:45:54.360,0:45:55.880 I find myself 0:45:55.920,0:46:00.700 returning to often and that 0:46:00.700,0:46:02.580 remain with me. 0:46:03.200,0:46:05.700 I'll simply mention Mateusz Pakuła 0:46:05.700,0:46:08.060 and his book, 0:46:08.080,0:46:09.340 which was for me, 0:46:09.380,0:46:11.140 as he himself described it, 0:46:11.180,0:46:17.500 a narrative about co-dying with a loved one. 0:46:17.500,0:46:18.260 The perspective 0:46:18.340,0:46:21.120 he presented in this text, 0:46:21.200,0:46:22.120 demanding, 0:46:22.120,0:46:23.220 it seems to me, 0:46:23.240,0:46:27.220 a great deal of empathy and tenderness towards 0:46:27.220,0:46:29.520 a loved one, 0:46:29.520,0:46:31.260 was very important to me. 0:46:31.300,0:46:32.640 And I think 0:46:32.720,0:46:34.300 another important text for me, 0:46:34.340,0:46:37.080 one that has shaped my interest in maladic discourse 0:46:37.080,0:46:38.200 throughout my life, 0:46:39.340,0:46:41.040 perhaps even this journey. 0:46:41.120,0:46:42.600 It all began with him, 0:46:42.600,0:46:43.780 Aneta Żuchowska's Miech. 0:46:43.840,0:46:46.100 It was the first pathographic text 0:46:46.120,0:46:49.260 that I read and it was so shocking, 0:46:49.280,0:46:51.680 I guess I could use this formula, 0:46:51.800,0:46:52.960 that I decided 0:46:53.000,0:46:54.320 that 0:46:54.340,0:46:55.080 the problems 0:46:55.080,0:46:58.020 that Żuchowska raises and that take place in this 0:46:58.020,0:47:00.800 field of research are simply important to me and 0:47:00.800,0:47:04.960 It's important, and it's worth simply looking at it and 0:47:04.960,0:47:08.100 subjecting ourselves to such literary reflection. 0:47:09.620,0:47:12.780 I completely agree with 0:47:12.840,0:47:16.360 what Wiktoria said, and I also have, 0:47:16.500,0:47:17.380 honestly, 0:47:17.420,0:47:21.840 trouble identifying a few works 0:47:21.880,0:47:25.180 that I would consider groundbreaking in some way, 0:47:25.240,0:47:26.040 because I feel 0:47:26.040,0:47:29.700 that encountering pathographic narratives is never 0:47:29.700,0:47:30.240 easy. 0:47:30.300,0:47:36.460 It's very demanding and always leaves a mark. 0:47:37.000,0:47:38.520 So I think 0:47:38.540,0:47:40.160 that the examples 0:47:40.180,0:47:41.980 Wiktoria mentioned, 0:47:41.980,0:47:45.860 books by Mateusz Pakuła and Aneta Żukowska, 0:47:45.860,0:47:50.440 are indeed excellent confirmation of this statement. 0:47:50.560,0:47:52.760 However, 0:47:52.880,0:47:57.260 what I truly value in pathographic narratives 0:47:57.260,0:48:00.400 is also this reversal of perspective. 0:48:01.100,0:48:02.180 As I've already mentioned, 0:48:02.200,0:48:05.300 these are often such confused genres. 0:48:05.460,0:48:07.080 Not only pathographies, 0:48:07.120,0:48:10.920 but also, for example, a kind of 0:48:10.920,0:48:11.640 mourning 0:48:11.680,0:48:13.440 literature or funeral literature. 0:48:13.520,0:48:17.860 So I also value those narratives 0:48:17.940,0:48:20.960 that possess this additional component. 0:48:21.060,0:48:23.420 Here, the already mentioned book by Justyna Wicenta, 0:48:23.540,0:48:24.680 "Lullaby with a Hurricane, 0:48:24.700,0:48:27.160 " 0:48:27.160,0:48:28.600 seems like 0:48:28.660,0:48:29.160 a well-known 0:48:29.160,0:48:30.300 example of this type of narrative. 0:48:30.380,0:48:33.220 However, given my scholarly interests, 0:48:33.320,0:48:37.940 which revolve around the construct of female madness and how it has been represented in various texts over the centuries, not just literary ones, my attention is drawn to these publications, both those situated in the field of personal documentary literature and those of a fictional nature, which address the issue of this 0:48:37.960,0:48:41.160 mental 0:48:41.160,0:48:43.560 crisis 0:48:43.700,0:48:46.700 , 0:48:46.700,0:48:47.520 but 0:48:47.520,0:48:49.000 also 0:48:49.000,0:48:52.880 how 0:48:52.880,0:48:53.700 they 0:48:53.720,0:48:57.140 break 0:48:57.140,0:48:58.260 this 0:48:58.260,0:49:00.160 narrative 0:49:00.280,0:49:05.260 , that is, by using, for example, irony, grotesque, or mockery, as if directing their blade at the very pathosystem of, for example, healthcare or social relations, which can and usually do influence or exacerbate mental crisis 0:49:05.340,0:49:09.100 . 0:49:09.100,0:49:09.760 At 0:49:09.780,0:49:13.340 the 0:49:13.360,0:49:14.420 same 0:49:14.540,0:49:16.920 time 0:49:16.920,0:49:20.720 , 0:49:20.720,0:49:23.720 the 0:49:23.720,0:49:24.360 question 0:49:24.380,0:49:28.480 always 0:49:28.480,0:49:31.460 arises 0:49:31.480,0:49:33.620 about 0:49:33.620,0:49:37.860 the emancipatory or identity-building potential of these 0:49:37.860,0:49:38.420 narratives, 0:49:38.420,0:49:41.340 so if we consider the narrative itself, we can see the context in which they are presented. 0:49:41.800,0:49:43.040 Emilia Dłużewska's " 0:49:43.060,0:49:44.760 How to Cry in Public Places," 0:49:44.800,0:49:46.900 or, for example, the notes of the madwoman Aleksandra 0:49:46.900,0:49:47.840 Młynarska-Gemza, 0:49:47.900,0:49:50.240 or, for example, 0:49:50.300,0:49:51.020 Olga Hund's "Psychra sniczki" ("Psyche of the Small Ones"), 0:49:51.080,0:49:52.940 which I greatly enjoy ( 0:49:52.940,0:49:53.720 though I wonder 0:49:53.820,0:49:55.540 if the word "liked" is appropriate here, 0:49:55.700,0:49:58.840 perhaps "esteemed "), 0:49:58.900,0:50:00.140 are certainly books 0:50:00.140,0:50:02.820 I would highly recommend 0:50:02.900,0:50:04.740 to anyone interested in maladic discourse 0:50:05.580,0:50:08.580 . From storytelling through self-therapy, 0:50:09.180,0:50:12.060 to maladic discourse, and back to literature, 0:50:12.060,0:50:13.880 what does our journey look like today? 0:50:14.060,0:50:15.660 Thank you very much for the interview. 0:50:30.129,0:50:32.810 Co-financed by the state budget under 0:50:32.810,0:50:35.850 the Minister of Education and Science's program "Science 0:50:35.850,0:50:36.910 for Society II." 0:50:37.010,0:50:38.950 The project number is in the description. 0:50:39.950,0:50:42.830 We invite you to listen to subsequent episodes 0:50:42.830,0:50:44.910 available on Sprecare, 0:50:45.090,0:50:48.570 Spotify, and YouTube, as well as in the online Polish Studies Bulletin 0:50:48.570,0:50:49.350 . 0:50:49.950,0:50:51.410 See you soon!